Wednesday, August 13, 2008

My Journey

This is my journey.

I'm currently battling stage 4/grade 3 metastatic invasive/infiltrating ductal carcinoma, e.g. breast cancer.

I've gone through 6 months of chemo and two months of radiation on the chest/neck/back.

I'm also currently undergoing a year long treatment of herceptin for the HER2 protein which I tested positive for.

The cancer has spread to my brain and lungs.

I'm currently going through brain radiation as well treatment for the lungs.
It's been a long tough road, but God is ever faithful and has blessed me tremendously during this season of my life.

If you'd like to hear more about my battle with cancer....read some of my blogs.
I try and update them regularly.

Enjoy, and feel free to contact me with questions, comments, etc.
I am ever so grateful for all the support and prayers of my family, friends, and even people I haven't had the pleasure to meet....yet!

I pray God blesses you as much as you have blessed me. There is so much about me, if you're interested feel free to ask. I may just answer you! :-)

LIFE.....And What It Boils Down To!

After sharing a rather characteristic story of a day in my life with some friends, I realized others may find it amusing as well. Hence, this blog.

By the way, if you are at all easily embarrassed or perhaps a male who finds talking about female anatomy awkward......stop reading NOW!! This blog entry is not for you!
(You have been warned....)

As you well know, I've had a mastectomy. The right breast was removed, which was traumatic enough. But, let me tell you about what life is like after a mastectomy.

First, their was the "temporary" breast. This consisted of a light piece of material filled with pillow stuffing. The idea is to safety pin it to the inside of your bra so it doesn't float away! Now, anyone with a pillow will tell you, when you put pressure on it, it tends to dip in. To flatten, if you will and to deform to various un-breast like positions. Not exactly attractive, I must say. Especially when you look down and one of your breast looks like an upside down ice cream cone!

I think the worst part of the "temporary" breast is sitting in your living room and having your cat run into the room with it in his mouth! Apparently, I have not bought enough toys for the little furball, so he's decided to make one out of my breast. Go figure!

After the temporary breast, you graduate to the prostethic one. This is much bigger and when you've only had a single breast removed, they weigh the prostethic down so it looks "natural" and matches your real breast (you know, the one they didn't lop off). So, now I get to wear this heavy prostethic in a bra during the middle of summer in Arizona (110 degree weather). You can't wash this thing......and after a while it can start to smell rather ripe, if you know what I mean. So, I don't tend to wear it all that often.

However, on this one particular day, I did decide to wear it. I decided to wear it to my doctor's appointment to meet my new oncologist. My mother went with me and the appointment went well. I liked the doctor, his staff, and the new treatment plan he had mapped out. After the speaking with him and the initial exam, he momentarily left the room but left the door open. His billing specialist walked in the room and asked for my insurance card so she could make a copy. I stood up off the examining table and walked over to my purse and got the card. I handed her the card and she walked out of the room. I didn't think she would take long, so I stood there waiting for her to return.

As I was talking to my mother, something caught my attention on the floor. I stood looking at it for a moment, my brain trying to register what it was. It looked familiar, yet it was foreign somehow. Couldn't quite put my finger on it..................until............light bulb goes off in my brain and I realized IT'S MY BOOB! My prostethic breast has managed to wiggle it's way out of my bra, down my shirt and onto the floor. Completely oblivious am I to all this, I don't feel a stinking thing cause guess what.....when you have a mastectomy, they cut all your nerves in your chest so you're numb!

Needless to say, my mother and I lost it. We were laughing so hard I thought we were going to pee our pants. I figuredd it was a blessing to realize that I lost that roaming, mind-of-it's-own breast thingy in the doctor's office and not when I got down to the car! Can you imagine me going back into the building asking people as I pass them if they have seen a boob wandering around somewhere?!?!?!? My mother suggested that I write on the back of it "IF FOUND, PLEASE CALL......"

Yes, this is my life now. Keeping track of a boob that has a mind of it's own. Thank you so much! By the way, my doctor suggested I get a prostethic bra......they apparently have a pocket for the roaming, mind-of-it's-own breast thingy. Again, go figure!

Well, praise God it didn't happen in church! That would have been interesting to explain.
AMEN!

Saturday, August 9, 2008

8/9 update on my battle against breast cancer

PET Scans are very interesting. For those that do no know what a PET Scan is or does, I will try and explain the best I can.

They initially inject a radiactive isotope/glucose mixture into your blood. The reason they use glucose is because the glucose adheres well to the cancer cells. Like me....cancer like sugar! Go figure?!?! Anyway, as I was saying....before I was rudely interrupted by the obvious, the glucose adheres to the cancer cell and when scanned, the radioactive isotopes create a glow. This allows the radiologists to see where clusters of cancer cells may be in the body.

Well, ladies and gentleman, the good news is that my chest, abdomen, and pelvis regions DID NOT LIGHT UP!!!!! Praise God!

However, there were lymph nodes in my neck that light up. Now, the doctor doesn't seemed surprised or worried. He said the nodes were in a precarious position and removal would be rather risky. He would like to keep an eye on them and continue with the chemo treatments. After my initial 8 weeks of chemo are up I will have another PET Scan. At that time, if the glowing nodes are still there, my doctor and I will discuss more chemo or the possibility of radiation. I'll be having radiation done on the chest and right arm/armpit area anyway, so to add another location should not be too difficult. We'll have to wait and see. I am praying that by the end of the 8 weeks, the PET Scan shows nothing in my body glowing!

On Thursday, I had my chemo and herceptin treatments. For those of you keeping track....that means I have 6 more chemos left and 48 more herceptin treatments to go.

There by the grace of God I go.........

I had a vision the other day I believe was from the Lord. I was in a boat.......a little dingy if you will. It had a single mast,mangled and tattered by past storms that ravaged the tiny vessel. The clouds were dark and ominous and the winds were kicking up from all directions. White crested waves were heaving their weight and tossing me to and fro. The boat was barely able to stay afloat.

At that moment, the Lord allowed me to see the water with more clarity. Amazingly, the water wasn't water, per se. It was made up of thousands of hands.....praying hands! I wish you could have seen it. It was incredible.

Instantly I knew what was helping me stay afloat. God of course was there with me and never left my side, but your prayers were keeping me afloat. The water was just a vast sea of prayers.

From the bottom of my heart, thank you for all your prayers. They are so powerful and I am ever grateful.

N~

Friday, August 1, 2008

8/1 update on my battle against breast cancer

Hi everyone,

Well, let's see.....what has happened since we last spoke? O.K., Dr. Kato gave me two treatments of Herceptin by itself and I didn't have any allergic reactions to the medicine! Praise God! Thank you so much for all your prayers.....they worked! This week I started a new chemo along with the Herceptin. The chemo is called Abraxane. It's considered a pretty agressive chemo for metastic breast cancer, so it should do the trick. It has all the expected side effects (e.g. nausea, headache, muscle/joint pain, fatigue, irritable bowel, mouth sores, etc.) But, so far, I'm doing relatively well. I have some nausea, but the anti-nausea medicine is taking the edge off. I have the headache, fatigue, muscle and joint soreness.....it's like having a really bad case of the flu. But I'm managing by the grace of God! Woo Hoo.....one down and 7 to go.

So, the plan is that I will have the Abraxane/Herceptin treatments once a week for eight weeks. Assuming there will be not additional complications with this chemo, I will start radiation the end of September or the beginning of October for three months. I will be having radiation 5 days a week for about 10-15 minutes a day. Herceptin will continue weekly until August of next year. So, by the beginning of the new year, I should be just on the Herceptin and moving right along.

My PET Scan is this coming Tuesday (Aug. 5th) to see if the cancer has spread to my lungs or anywhere else for that matter. Whatever the results, I know I'm going to be fine. It may end up being difficult, but I'm a tough cookie. And with all of your prayers......I'm definitely in good hands with the Lord.

Well, I meet with Dr. Kato on Thursday, Aug. 7th to go over the PET Scan results, the second pathology results and to have my next chemo/herceptin treatment. I will keep you informed of any changes, progress, that sort of thing.

Take care and God Bless you all!
Noelle

Changes.....BIG ONES

Before Chemo.....



After Chemo.....




With my mouse ears!




7/16 update on my battle against breast cancer

Hi everyone,

Well, let’s see…there is so much new information to tell you that I don’t know where to begin. I decided to get a second opinion about the Herceptin treatment. I met with a medical oncologist named Dr. Kato at the Virginia Piper Cancer Center at the Scottsdale Healthcare Center on Shea. I really liked him and his office staff. I liked him so much, I decided to start seeing him instead of my old medical oncologist. I felt extremely comfortable with the treatment plan he would like me to be on.

Believe it or not, Dr. Kato believes that I am not allergic to Herceptin, but to the chemo, Taxol! Now, both my old oncologist and Dr. Kato believe there is no way I can go without treatment for the HER2 protein. In fact, Dr. Kato said that if I go without any treatment to kill the protein, my recurrence rate jumps up 50%! And my survival rate drops considerably as well. However, the doctors differed drastically in their approach to treating the HER2.

There is a newly FDA approved drug called Tykerb that treats HER2 positive cancer as well, but it is usually given to only stage 4 patients whose cancer has spread to other major organs. That’s not me. I have stage 3 cancer and my cancer has only spread to my lymph nodes (even though there is a possibility it may be in the lungs). Dr. Kato’s plan was outside the box. He said, if by the off chance I’m really allergic to the Herceptin, he’d like to try the Tykerb even if I don’t fit the mold of the typical cancer patient who takes the drug. I’m all for that, since my old oncologist wanted to give me Herceptin even if I was allergic to it and then give me steroids for a year to counteract the allergic reactions. Needless to say, I wasn’t at all thrilled with the idea of steroids for a year! Hence, the second opinion!

Well, Monday I had my first Herceptin treatment at Dr. Kato’s office. I wasn’t given any chemo, just the Herceptin. He would like to see how I react to the Herceptin alone before introducing a new and different chemo called Taxotere. He has stopped the chemo Taxol altogether. He really believes that I have been reacting to the Taxol the whole time. And guess what! So far, no reaction to the Herceptin! Ain’t God awesome!?!?!

So, the plan is to meet with Dr. Kato next week to follow up and then get another Herceptin treatment. He may or may not start my new chemo next week….it all depends on how it goes with the Herceptin this week. I’m also getting a PET Scan and a follow pathology test to confirm the HER2 since the original test took 2 months to come back. He would like to double check the pathology because the lab doesn’t usually take that long for results. The PET scan was never originally done because of my sarcoidosis. Sarcoid apparently causes a lot of false positives on the results, but Dr. Kato believes having a baseline regardless of the “hot spots” would be beneficial. I agree and look forward to seeing the results of that test. I’d like to see if my lungs are a “hot spot”. I’m praying they don’t light up!

I’d like to take this moment now to express some thoughts that have been heavy on my heart:

Kim, Sue, Ames, and Melinda….your friendship and love have kept me grounded and I am blessed to have each of you in my life. Debs….you are an incredible gift straight from God. Lindsey, Hannah, and Julie….Jesus radiates through each one of you and the movie Rat Race RULES! Tim, Amy, and handsome little man Paul....thank you so much for the timely and beautiful email! Jeff….we keep missing each other, but I look forward to getting together for that lunch. Marylois….you are wisdom and comfort for me, thank you. Ana, thank you so much for your friendship throughout the years. Barbara Repan….I know you have your hands full yourself, but your thoughtfulness and cards have been so kind and I’m praying for you my friend. Rene’….your wisdom and anointing have helped keep me sane, praise God for you! To my family….you are my heart and you have been such a blessing to me and I wouldn’t be here without you, thank you. To ALL of my friends and family who have prayed and have been so generous to me….I thank you and my heart overflows with gratitude! There have been so many people who have been a blessing to me, I wouldn’t be able to remember everyone, so please forgive me if I did not mention you by name.

God bless all of you.


Blessings,Noëlle

7/2 update on my battle against breast cancer

Hi everyone,

I have good and bad news. I have four more weeks on the new chemotherapy I’m on, Taxol. Then it’s on to three months of radiation. Yeah! I’ll be extremely happy when chemo is over. Taxol, along with the Neulasta shot, causes excruciating bone pain and I’ll be glad when I’ve “graduated” from the chemo stage. Not that I’m looking forward to radiation, but it’s got to be better than chemo.

However, there is some bad news. As you may know, I tested positive for a protein called HER2. HER2-positive tumors are a particularly aggressive form of cancer that affects approximately 20 percent to 25 percent of breast cancer patients. HER2 pushes a cell to divide, and while a little on a cell is normal, a lot is not. No one knows why, but in these so-called "HER2-positive" tumors, these proteins are over-expressed. When this happens, the cancer becomes aggressive.

The only FDA approved treatment for this aggressive type of cancer is Herceptin. Herceptin is a specific type of biologic therapy, a monoclonal antibody, designed to shut down activity of these HER2 proteins by sticking to and "smothering" them, halting the pro-growth molecular instructions that these proteins relay into the body of the cancer cells.

The bad news is that I’m experiencing an allergic reaction to the Herceptin. In fact, my doctors have halted the treatments of Herceptin for the last three weeks until my symptoms subside. I’m supposed to take the Herceptin treatments for a year, but it looks like I may not be able to take it at all! This definitely worries both the doctors and myself because if they cannot kill the “food source” of my cancer, my survival and recurrence rate drop considerably.

Please pray for wisdom for the doctors and that either my body can tolerate the treatment or that if I cannot have treatment, that God will deal with the HER2 protein and kill it Himself. Please pray for the allergic reaction to subside. I’m currently taking Benadryl and steroids which are causing their own issues and side effects (internal bleeding, fatigue, & suppressed immune system). Please pray that I will be off of these drugs soon and will no longer need them.


Blessings,Noëlle

6/20 update on my battle against breast cancer

Hi everyone,

Well, last week the doctors started me on a new chemo (Taxol) and the HER2 protein synthetic antibody (Herceptin). The IV treatment was to take about 5 hours, 4 for the Taxol and 1 for the Herceptin. However, there were some complications during the infusions. I started having chest pains and an allergic reaction. They had to give me steroids and Benadryl. It ended up taking about 7 hours all together. Then the next day I had my Neulasta shot which forces the bone marrow to produce white blood cells.

This treatment doesn’t cause nausea with me, thank goodness. It does, however, cause excruciating bone pain which is only intensified by the Neulasta shot. So, they gave me some pretty potent pain drugs (Dilauded) which only dulled the pain to be somewhat bearable. It still was painful. Then I started having chest pains again and hives. They’ve had me on steroids and Benadryl since I’ve had the treatment. There are concerns with the amount of steroids I’m taking because they are somewhat dangerous. The steroids completely wipe out the immune system which is already compromised by the chemo.

I went in this week to get my Herceptin treatment and they decided not to give it to me until my complications die down. The port-catheter in my chest has hives over it and hurts as well, so I’m going to see the surgeon today to see if it is infected and needs to be replaced.

Please keep me in your prayers. Please pray that my body will be able to take the Taxol/Herceptin treatments without any complications. I only have 6 more weeks of treatment with the Taxol, but I have 12 more months of the Herceptin treatment. Please pray for protection as well so I don’t catch an infection and that my port-catheter heals.

Also, Hannah Reyes sent out an invitation to participate in helping with meals for me. The website she is using is www.foodtidings.com which is a website to manage food schedules for family or friends in need. If you feel the Lord leading you to help out with meals or know someone who may be interested, you can pick a day by clicking on the link below.

http://www.foodtidings.com/SignUp.aspx?ScheduleGuid=2e4ec021-ffa8-498b-9555-545e4123a820

I continue to say thank you for all your support and prayers, but I find “thank you” is such an insufficient phrase to express my heart’s gratitude. I hope you all know how deeply I appreciate everything you’ve done and continue to do. Thank You and God bless you.


Blessings,Noëlle

5/28 update on my battle against breast cancer

Hi everyone,

I wanted to give you an update on what is going in my world…….

I just finished my 4th chemo yesterday. So, I’m lying here trying to distract my brain from the nausea and catch up on some emails. This is the last chemo of this type (Adriamycin/Cytoxan). My next chemo, I start getting a much harsher chemo (especially harder on the heart) called Taxol. Next week I will get what is called a MUGGA test to see if my heart is strong enough to process the Taxol for eight weeks. Taxol is very stressful on the heart, so they deliver it intravenously through my port-catheter rather slowly. It will take about 5 hours, where the Adriamycin/Cytoxan cocktail took about 2-3 hours.

I should know before I start the Taxol whether or not my cancer is a specific protein base or not (the HER2 protein). If I do test positive, I will need to take a medicine called Hercepton intravenously every week for a year and it will have to start the same time I take the Taxol in two weeks. I’m definitely praying that the protein test comes back negative. I know with the Lord, I’d be able to do chemo for a year, but I would really like this cup to pass over me.

After the Taxol is done in eight weeks, (and possibly while the Hercepton is going on) I start my radiation therapy. I will have radiation for every weekday for three months. Then, onto hormone therapy and genetic testing.

Anyway, I’m just trying to get through this week with the nausea, diarrhea, headache, and extreme bone pain. I should be feeling well by Sunday. My white blood count has been low, so I have not been able to get out as much as I would have liked, and I need to stay away from people with colds, but other than that, I am hanging in there. The Lord gets me through one day at a time.

Thank you for all of your prayers as I am coveting them right now! J Your support and prayers have been unbelievable and I am ever so grateful for them all. Please continue to pray for my grandmother as well. She is stable since her stroke, but mentally has deteriorated and needs to be moved from the rehab facility because they don’t see much improvement. Please pray as the Lord leads you.

And pray for Debbie, Hannah, and Lindsey who have been a tremendous help in organizing my support through all this. If you would like to contact them and find out how to help, please let me know and I will pass along their phone numbers. Please keep them in your prayers as well, for they are blessings sent from heaven!

God bless you all!

Blessings,Noëlle

4/9 update on my battle against breast cancer

Hi everyone,
Well, I’ve had my doctor’s appointment today and there was good news and not so good news. The good news is that I’m stage 3, not 4 which is the worst. Also, the cancer has not gone into the bones or any major organs. Unfortunately, it is the most aggressive grade of cancer.

However, there are several nodules on my lungs that are small so they cannot tell if they are cancer or granulomas, which are a result of my auto-immune disease, sarcoidosis. They are small enough that surgery is not needed and the doctors will make sure they continue to watch the nodules during chemo and see if the get smaller and/or go completely away. If they do, then they most likely are lung cancer. If they stay the same and nothing changes, they are most likely the granulomas from the sarcoid. We will cross that bridge when we come to it and I should have more information at a later time. Most likely in about a month.

As for the chemo, I start on Monday the 14th. I will have chemo every other week and for the first four treatments, they will be giving me two types of chemo at once. They will take about 2 hours. After the four treatments are done, they will start me on a third chemo which I will continue to take until it is over. They will take about 5 hours because they will need to deliver the chemo in my port slower. However, they are still waiting for a test called the HER2 Protein test to come back. If it comes back positive, they will start a fourth chemo at the same time as the third one. But, this fourth chemo to treat the HER2 protein might need to be taken for up to a year. After chemo is all done, then I’ll start the radiation.

They gave me all the side effects to expect; fatigue, weight loss, possible mouth sores, losing my hair, and nausea, etc. They have prescribed three drugs for me to take to combat the nausea. I sure hope they work! J I’m going to a wig store tomorrow to consult about getting a wig. Maybe I’ll become a blonde or a brunette!?!?! What do you all think? Ha Ha…I might really look scary as a blonde or brunette with my coloring!

I think the saddest news they told me and what was such a sucker punch, was that I will be forced into early menopause. Therefore no kids. It’s ironic…..I never wanted children my whole life (since I was 12) until about three years ago. God put a desire in my heart and I wanted to have children and now I won’t be able to have them. They said I could try to harvest my eggs before the chemo, but unfortunately, that won’t work. It will take about 1-2 months to harvest my eggs and my chemo is the most aggressive kind and I cannot wait that long to start chemo. So, unless I can harvest them in the next four days…..I don’t think it’s going to happen. Also, the chance of recurrence of this kind of cancer is 30-50% and typically when it comes back it has a high rate of coming back as an incurable cancer with very low survival rates.

Currently, the doctors give me a 70, possibly 80 percent chance of survival with this chemo and radiation treatment. Then I’ll need to pray that the cancer doesn’t recur, especially as an incurable cancer (i.e. bone, lung).

Basically, I’m grieving the loss of being able to have my own children and also the sense of losing my femininity. I’ve been told the grieving process is normal in this situation and it will just take time to process through all the emotions and loss. I know there are other options out there, but I still need to grieve. I covet your prayers during this process. I know the Lord is in control and can do miracles. I trust Him with my life and I know that whatever happens, He will turn to good. He is my refuge and my safe haven. And most importantly, the Lord is our Great Physician and my life is in His hands. Who knows, maybe He will perform a miracle and give me a child of my own. He did for Sarah, and boy was she post menopausal! J

I know today was completely covered in prayer. I could feel it. I keep saying two little words that seem so inadequate……but, there are no others to say so, THANK YOU. I love you all and appreciate you all for your support. May God bless you abundantly as you have bless me! I will write more after my chemo next week.

Blessings,Noëlle

4/2 update on my battle against breast cancer

Hi everyone,

Under the advice of a wise friend and gifted counselor, I’m creating this email blog for family and friends to receive. It was suggested that I email updates, results, struggles, prayer requests and the such. I know you all have expressed a desire to keep updated on what is going on and have all asked how you can be praying for me. I thought this would be a great way for everyone to stay informed and a wonderful way for me to be able to express where I am in the process and any specific prayer requests I may need.

I cannot express the amount of gratitude and blessing I have felt with the support, love, and prayers you all have sent my way. Words cannot properly express my appreciation. I thank God every day for my family and friends and the support He has provided for me during this season in my life. I pray that the Lord bless each and every one of you for your love and kindness.

As for where I am in the process…..well, I’m still waiting to be scheduled for three very important tests. I need to have a “Mugga” test done on my heart in order to make sure the valves, blood flow, etc are working properly and can sustain the stress of the chemotherapy. The other two tests are a bone scan and a total body CAT scan to see if the cancer has spread anywhere else.

Right now we know that I have breast cancer that has already spread (metastasized) to the lymph nodes. The cancer has come back as a level 3 cancer which is, on a scale of 1 to 3, the most aggressive. They are still testing the tissue to find out what stage I’m in. They know I’m at least a stage 3 because it’s already metastasized, but I may be a stage 4 because of the aggressiveness of the cancer. They are also testing the tissue for certain proteins, enzymes, and hormones in order to accurately diagnose the type of breast cancer I have. This will allow them to structure a more precise chemo cocktail to fight the cancer.

The oncologists have told me my therapy will consist of up to 6 months of chemo and up to 3 months of radiation immediately after. Then they will put me on a hormone therapy and do some genetic testing to figure out how I got such an aggressive cancer at a young age with no real cancer history in my family. Other than the fact that it is such an aggressive cancer and a high stage, the reason for the potentially long treatment is due to the fact that I have an auto-immune disease called sarcoidosis. The oncologists are concerned as to how it will effect treatment.

I am praying that they will be able to schedule my three tests immediately so I can get the answers I need. Please pray for me on Friday, April 4th. I am having another surgery at 7:00 am to have the port-catheter put in so the doctors will be able to deliver the chemo to the heart. It is outpatient surgery and I should be home from the hospital by lunch time. The surgery is at Banner Baywood Medical Center in Mesa (Broadway and Power). My next appointment to see the oncologist is Wednesday, April 9th. Please pray that the oncologist, Dr. Halbur, will have all the results from all of my tests and pathology to answer my many questions.

Please also pray that we can start on the chemo treatment as soon as possible. They won’t be able to start the chemo until I’m further in the healing process from the mastectomy. The staples need to be removed along with the drainage tube from the lymph node area. Please pray for a speedy healing from all three of my surgeries. Please also pray for fatigue. I’m having overwhelming fatigue and trouble sleeping.

And last, but not least, I would like to have everyone pray for Debbie Evans. She is walking the 60 mile, 3 day Breast Cancer walk in my honor. I cannot tell you how much that has touched my heart. More than she will ever know. She is raising money for breast cancer research. If you would like to donate, please check out the following link: http://08.the3day.org/goto/DebEvans. Your support will be such a blessing.

Also, I know that many of you have expressed a desire on helping me in any way you can. If you are interested in helping me with meals, please check out the Food Tidings website at http://www.foodtidings.com/SignUp.aspx?ScheduleGuid=2e4ec021-ffa8-498b-9555-545e4123a820 and create a free login and sign up for a meal. And please don’t hesitate to call me or stop by to see me. It would be such a blessing to see you if possible. I’m currently on short term disability from work, and if I’m not recovering from a surgery or “having a bad day”, I would love to spend the good days with my family and friends.

Thank you again for all your prayers, your support, and especially your love. May God Bless each one of you.

Blessings,Noëlle